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I completed the questionnaire; why haven’t I been contacted about a research day?
We will let you know when we receive your questionnaire. Not everybody who completes a questionnaire will be invited into clinic. This is not because you did anything wrong, but may be because we are not looking for any more volunteers from your demographic (such as age group) for our current studies. We will be doing different studies for several years so you may be invited to take part in future studies instead.
When are appointments available?
We will be doing research days on weekdays, weekends and in school holidays. If we invite you in for a research day, we will let you know what appointments are available and find a day which suits you. We will send you a confirmation of when and where you need to go; we will send this by post and email.
Can I do two half days instead of one full day?
Unfortunately not; the research day tasks all need to be completed on the same day. We will do our best to find a day that suits you.
I can’t remember where to go or when to come in; what should I do?
Contact us as soon as possible and we will send you a reminder.
How do I find your clinic?
See the How To Find Us page for details of our clinics. We will also send you a map and directions with your appointment confirmation.
I can’t come to my appointment any longer; what should I do?
Contact us to let us know. Please tell us as soon as possible so we can try and give your session to somebody else. If you would like to come in on a different day, we may be able to arrange a new appointment with you.
I don’t want to come to my appointment any longer; what should I do?
Contact us to let us know. Please tell us as soon as possible so we can try and give your session to somebody else. Please let us know whether you would still like to be considered for future studies, or whether you want to withdraw from NSPN altogether. Please tell us if you want us to destroy your personal data (e.g. name and contact details) and/or your research data (any anonymous data you have given us so far, such as questionnaire answers or genetic samples).
What if I get lost or am running late on the day?
Please take our phone number with you so you can let us know if you have been held up or are lost. A contact number will be on your confirmation letter or you can find our number on the Contact Us page.
What happens if I forget to come in or just don’t turn up on the day?
We will contact you a few days before your appointment to remind you about it, and will also try to phone you on the day if you don’t turn up. If you miss your appointment and would still like to come in, we may be able to arrange an alternative date. If you forget for a second time, we will need to take you off our active volunteers list.
MRI scan time is very expensive and we may have to pay for it whether or not we have a volunteer to scan. Therefore if you forget to come in on a day when you were booked to have an MRI scan, we may reschedule you to do the other tasks (such as questionnaires and computer tasks) but will not ask you to do MRI again.
Does a parent have to come in with me and stay all day?
If you are under 16, a parent, guardian or carer will need to come in with you in the morning so that we can explain to them what you will be doing and get their consent for you to participate. This may take about half an hour. If you are under 16, we need consent on the day from a parent, guardian or carer for you to participate. Some clinics will need your parent to stay all day; other clinics are happy for your parent to leave if that is what they prefer. Please let us know what you would rather do so we can try to accommodate it.
Consent must be given by someone with a legal responsibility to look after you. Consent cannot be given by someone like an older brother or sister, an aunt or uncle, a grandparent, or your mum’s or dad’s new partner, unless they are formally recognised as your legal carer. If you arrive in clinic by yourself, or with someone who cannot give consent for you, you will not be able to do anything!
Can I bring someone with me if I want to?
If you are under 16, a parent, guardian or carer must come in with you first thing in the morning to give their consent for you to participate.
As there is not a lot of space in the clinics, please let us know if someone is planning to come with you and stay all day. They will not be able to sit in on your assessment so they will be hanging around a lot; they are welcome to bring along something to do.
Please do not bring babies, toddlers or young children with you to your appointment; they will not be able to stay with you while you are doing the assessments and we do not have the facilities to look after them.
My friend/partner/sibling has volunteered too; can we come in on the same day?
Please let us know if you would like to come in on the same day as another volunteer and we will do our best to organise this. We can’t guarantee that we will be able to do this as we may not have enough rooms or staff members available, but we will try!
Didn’t answer your question? Contact us!